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Information for Parents
A hearty section for NEW Parents (Congratulations!!!)
In this section you'll find information on caring for your cleft-affected
newborn, basics on doctors, what to tell siblings, taking pictures, stress
reduction, starting your own support groups and more. Start in this section and
then work your way through the other areas (Feeding
Issues, Surgery, Terms).
For New Parents ~ Congratulations on your new
baby!!
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| General Info On the Newborn:
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| New Parents FAQ for Cleft Lip &/or Palate
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| Facts About Clefts
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| Cleft Detection Through Ultrasound
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| Clefting and Mental Retardation
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| THE BIG QUESTION: What Makes a Cleft?
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| Wording Your Baby Announcement
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| Birth Defect Statistics
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| Reference Book: A Parents Guide To Cleft Lip & Palate
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Reference Book: The Cleft Palate Story
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| Resources:
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| National Organizations and
Resources |
| Online Links/ Resources
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| Organization: Let's Face It, A Family Resource
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Information About Early Intervention Program
For detailed information on
Early
Intervention click here.
Also check the
Wide Smiles
Support Section for more online and offline resources.
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| Reference Book: A Parents Guide To Cleft Lip &
Palate |
| Reference Book: The Cleft Palate Story
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| Video: If Your Baby Has A Cleft
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| Book: Autobiography of a Face
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| Book: David Jackson: Boy With No Nose
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| Book: David's Story Review
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| Book: Nobody's Perfect
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|
Craniofacial
Surgery Book Noteworthy: Cleft repairs, different types of clefting,
some related syndromes. |
| Some Online Links to Drug/Medical Websites
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The Resource
Room by Maryann B. Hunsberger
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| On Taking Pictures - DO!
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| Pre-surgical Photos - One Mother's View
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Pre-surgical Photos - Take Them or Not?
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| On the Doctors You'll See (More articles on the
Surgery
Page) |
| Family Centered Care - A Medical Philosophy
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| Multi Disciplinary Approach to Cleft Care The Various
Doctors and What They'll Do |
| Internet Guide to HMOs
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The Effective Professional
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| Parental Emotions
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| Handling It: Styles of Coping
with Stress |
| Coping Strategies In Families Dealing With Clefts
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| Lost and Found - Dealing With The Feelings and Emotions
Accompanying Your Baby's Birth |
| The Road To Resolution, One Family's Experience
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| Three C's of Etiology - Cause, Contribute, Correlate
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| Warning Signs of Clinical Depression
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| When Normal Grief Becomes Clinical Depression
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| Reaction Time - What to Say to Strangers
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| Welcome to Holland
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| Sharon Gerfen's Personal Trip To Holland and Beyond
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| Aids To Acceptance
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| A Child, Not a Cleft
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| Dwell not on the past...
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| Resilience: Turn Crisis into Opportunity
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| All Aboard - Bus Ride
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| Why We Miss the Cleft
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| What to Say When someone says, "Is there anything I
can do to help?" |
How Can I Help?
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| Good Stuff for Parents and Baby
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| Getting Rid of Headaches
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| The Gentle Touch -- Infant Massage Great for Mom/Dad &
Baby |
| Chapped, cracked peeling lips - Try Bag Balm
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| Summertime Tips
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| Medication Checklist: Questions before you take
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| Reducing Stress in our Lives
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| Symposium Workshop - Relaxation and Healing
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| Baby Bill of Rights
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| The Tools We Give Our Children
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| Nasal Aspirators for Babies with Cleft
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| Diaper Rash Remedies
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Cigarette Smoke Around Children with Cleft
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| Helping Your Child
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| Cleft Talk In The Home - How the
Parents' Reaction to the Cleft will Affect the Child Throughout Life by Dr. John
Canady |
| Talk To Me -- Talk to Your Kids
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| 10 Ways to Enhance Your Childs Self-Image
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| When Should I Start Talking to my Children about their
Cleft? |
| Preparing Child for Surgery
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| Traumatic Reactions: Recognizing Signs in Kids
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Good Communication - 15 Quick Tips For Getting Your
Point Across
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| On Telling Siblings
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| What's Wrong With My Baby Brother?
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| Explaining the Cleft to Young Children
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Preparing Kids for When Parent Goes Away
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| Reaching Out/Starting Support Groups
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| Reaching Out - What to Offer To New Parents
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| Reaching Out To Others - Need for Support Groups/Creating
Groups |
All Aboard - Bus Ride
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| Outreach Packet #1 (First Contact)
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Outreach Packet #2 (Follow-Up)
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| For older childrens' issues on self esteem, school,
teasing & more: Go to the "Everyday Life"
section. |