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Brian
Brian was born with Pierre Robin Sequence (PRS), including a wide "horseshoe" shaped cleft of the hard and soft palate. These pictures are presented to you by his parents, David and Robyn, and his brother Shaun.
Here
is our sweetheart at 2 weeks old. Snuggled in his car seat, we are just home
from another doctor visit. You can see how recessed his lower jaw is here, one
of the features of PRS. He still hasn't made it back to his birth weight. |
This
is Brian at 5 weeks, the day after he was released from the hospital following
surgery to place a palatal prosthesis and tubes, as well as a lip-tongue
adhesion to try to alleviate breathing problems. He is sound asleep and he has
just been blessed (christened). The blue thread coming from the right side of
the mouth is a tongue stitch connected to a button in the back of his throat to
keep the pressure off his tongue while it heals to his bottom lip. This will be
reversed after the palate is repaired and breathing is no longer an issue. |
Here
he is at 5 months, during one of the rare times he could swing. We had to be
very careful as the reflux was a major problem. The cast on his left leg is to
help correct a condition called Metatarsus Adductus. His foot was turning in and
slightly down, so a series of casts was necessary.
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| This is Brian and Grandma just prior to Brian's palate
surgery. They are checking out the fish in the "waiting" area prior to
surgery. Brian is 7 months old.
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And this is our "squeaker", 3 weeks post op (like 2 days ago...). Happy as can be, and totally healed and recovered.
This could be a blackmail photo- but he's being modest! Brian is totally into "tubber" time! This is his and daddy's time every evening! Almost 8 months old, and almost too big for the sink tub! |