|
This was Cohen at 2 months, brother to Caeden
also here in the gallery. We had an obturator built for him but he refused to
eat with it in! He loves to cuddle is an absolute joy!"

This is our handsome guy's wide smile!! Isn't he
a doll!
|
|
Cohen
a few hours after surgery. The poor guy had his "lip adhesion", ear
tubes and was circumcised all at the same time! Our surgeon is going to do his
lip in two stages, so he will have his "lip repair" at 9 months
along with his palate.

This picture was taken only two days post-op,
doesn't he look great! He had hardly any swelling, is eating well, and is
sleeping through the night again!
|
Our sweet baby boy, two weeks post-op. He is doing great
but misses his pacifier ! He doesn't mind the arm restraints, and besides
the adhesion coming apart a little at the very top (which isn't a problem)
he hasn't had any complications.

This is Cohen with his sisters, Reilly (4),
Saeda (1) and big brother, Caeden who was born
with a bilateral cleft lip and palate.
|
This is Cohen the day
after palate and lip repair. His surgeon did his lip repair in two stages so
this final one was at the same time as the palate repair. He had a horrible
time in recovery and started to bleed uncontrollably. I knew it was taking
them longer to take us back into the recovery area since this was our 6th
operation. When we finally got to see him there was blood everywhere and he
was on his stomach. He had a hard time breathing for about 12 hours. It was
very scary. He also didn't want to eat and got dehydrated. It took about 2
weeks for him to eat and drink normally. This was by far the hardest surgery
we have been though.

This is Cohen at 18
months. He is the happiest, sweetest and most charming little man I know.
He was diagnosed in March of 2001 with a Rathke's Cleft Cyst which is a
type of benign pituitary tumor. He had not grown from August 2000 to March
of 2001. It is related to his cleft lip and palate but is extremely rare.
He is on thyroid medication and will most likely have to start growth
hormone injections. Despite all that he is a very normal and awesome
little guy. He has the best smile and even some doctors don't notice his
cleft lip. By the way the nickname "PUFF" is still with him
after all the COCOA Puffs everyone ate for his last surgery!
|