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Aarskog Syndrome
Aarskog Syndrome Parents Support Group
- People served: Parents of children with Aarskog Syndrome
- Services provided: Public awareness, support, articles, and
newsletter
- Address: 62 Robin Hill Lane, Levittown PA 19055-1411
- Phone number: (215) 943-7131
Acne
Acne Support Group (United Kingdom)
- People served: Individuals and families dealing with acne
- Services provided: Support, newsletter, printed materials, and public
awareness
- Address: PO Box 230, Hayes Middlesex UB4 OUT
- Phone number: +44 (0) 181 561 6868
- Website: http://www.m2w3.com/acne/
Acoustic Neuroma
Please note: Acoustic neuroma affects the cranial nerves of the
face.
Acoustic Neuroma Association of Canada
- People served: Individuals and families dealing with acoustic
neuroma
- Services provided: Information and support
- Address: PO Box 369, Edmonton, AB T5J 2J6 Canada
- Phone number (403) 428-3384
The Acoustic Neuroma Association (United States)
- People served: Individuals and families dealing with acoustic
neuroma
- Services provided:
- Offline: Information and referral and local support groups
- Online: Information and listserv
- Address: P.O. Box 12402, Atlanta GA 30355
- Phone number: (404) 237-8023
- Email address: ANAusa@aol.com
- Website: http://ANAusa.org/
Agenesis of the Corpus Callosum
Please note: Agenesis of the corpus callosum can occur with
midline defects, such as arhinia.
CORPAL Support Group United Kingdom)
- People served: Parents of children with Agenesis of the Corpus
Callosum or Aicardi's Syndrome
- Services provided: Information and referral, support, promote
research, newsletter, and brochure
- Address: 7 Bromley Avenue, Flixton, Manchester M31 3HZ
- Phone number: 061-748 0014
- Contact person: Mrs Diane Crichton
The ACC Network (United States)
- People served: Individuals and families dealing with agenesis of
the corpus callosum
- Services provided: Information and referral, newsletter, directory,
and networking
- Address: University of Maine, 5749 Merrill Hall, Room 18, Orono ME
04469-5749
- Phone number: (207) 581-3119
- Email address: um-acc@maine.maine.edu
Albinism and Hypopigmentation
Please note: Cleft lip and palate can occur with albinism and
hypopigmentation.
National Organization for Persons with Albinism and Hypopigmentation
- People served: Individuals with albinism and hypopigmentation
- Services provided: Support network, local chapters, and conferences
- Address: 1530 Locust St., #29, Philadelphia PA 19302-4415
- Phone numbers: (215)545-2322 or 1-800-473-2330
- Email address: webmaster@albinism.org
- Website: http://www.albinism.org/
Alternating Hemiplegia
Please note: Alternating hemiplegia can affect parts of the body
including the face.
International Foundation for Alternating Hemiplegia of Childhood
- People served: Parents of children with alternating hemiplegia
- Services provided: Promote/fund research, public awareness,
information and referral, and support
- Contact Person for new family information, medical articles, newsletters, news releases, or
database information:
- Lynn Egan, Secretary
- Address: 239 Nevada Street, Redwood City, CA 94062
- Phone number: (650) 365-5798
- Email address: LAEgan@aol.com
- Website: http://www.ahckids.org/
Alternating Hemiplegia of Childhood Association (France)
- People served: Parents of children with alternating hemiplegia
- Services provided: Listserv, information, and support
- Contact person: Philippe Jourdain
- Email address: Philippe.Jourdain@free.fr
- Website: http://www.afha.org
Angelman Syndrome
Please note: Angelman Syndrome includes facial characteristics
that don't require reconstructive surgery.
Angelman Syndrome Foundation, Inc. (United States)
- People served: Families dealing with Angelman Syndrome
- Services provided:
- Offline: Regional contacts, materials, and information and referral
- Online: Information, regional contacts, and links
- Address: 414 Plaza Drive, Suite 209, Westmont, IL 60559
- Phone number: 1-800-IF-ANGEL (1-800-432-6435)
- International calls: (630) 734-9267
- Fax number: (630) 655-0391
- Email address: info@angelman.org
- Website: http://www.angelman.org/
Apert Syndrome
About Apert
- People Served: Individuals and families dealing with Apert Syndrome
- Services provided: Information and support
- Address: 31 Bethune Street, New York City NY 10014
- Phone number: (212) 989-2790
- Contact Person: Augusta Gruen
Apert Syndrome Pen Pals
- People Served: Individuals and families dealing with Apert Syndrome
- Services provided: Networking
- Address: PO Box 115, Providence RI 02901
- Phone number: (401) 421-9076
- Contact Person: Christine Bucci
Apert Support and Information Network
- People Served: Individuals and families dealing with Apert Syndrome
- Services provided: Newsletter, networking with families, and an
annual get-together
- Address: PO Box 1184, Fair Oaks CA 95628
- Phone number: (916) 961-1092
- Contact Person: Christine Clark, Director
- Email address: apertnet@ix.netcom.com
Teeter's Page
- People Served: Families and Individuals dealing with Apert or other
craniofacial anomalies
- Services provided: Photo gallery, listserv, and both online and offline
resources
- Contact person: Don & Cathie Sears
- Address: 1900 Shadowood Drive, Columbia, SC 29212
- Phone Number: (803) 732-2372
- Email address: catndon@apert.org
- Website: http://www.apert.org/
Apert Network (New Zealand)
Apraxia
Please note: Apraxia is a speech disorder that can occur.
Apraxia-Kids
- People served: Parents of children dealing with apraxia or
developmental verbal dyspraxia
- Services provided: Information, listserv, and resources
- Contact Person: Sharon Gretz
- Email address: sharong@apraxia.org
- Website: http://www.apraxia-kids.org
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