Online and Offline Support: B

Beckwith-Wiedemann Syndrome

Beckwith-Wiedemann Support Network (BWSN)

People served: Parents of children with Beckwith-Wiedemann Syndrome
Services provided: Support, newsletter, directory of families, brochure, and new parent packet
Address: 3206 Braeburn Circle, Ann Arbor MI 48108
Phone numbers: (800) 837-2976 Parents Only or (313) 973-0263
Email address: a800bwsn@aol.com
Website: http://www.geocities.com/beckwith_wiedemann/
Online Discussion Group: http://groups.yahoo.com/group/bwschat/

Bell's Palsy

Bell's Palsy Research Foundation

Birthmarks, Hemangiomas, and other Vascular Malformations

Please note: Birthmarks, hemangiomas, and other vascular malformations can occur anywhere on the body.

Birthmarks and Hemangiomas InterNETwork Support

Hemangioma Hope

Hemangioma Newsline

People served: Individuals and families dealing with hemangiomas and other vascular malformations
Services provided: Quarterly newsletter on medical information
Address: PO BOX 38264, Greensboro NC 27438-8264
Contact person: Karla Hall
Email address: Hemangnews@aol.com or Hemangnews@juno.com

Hemangioma Support System

The Hemangioma and Vascular Birthmarks Foundation

People served: Indiviudals and families dealing with vascular birthmarks
Services provided: Referrals, financial assistance, quarterly newsletter, bi-annual conference, resource list for clinics and doctors, advocacy, support and counseling, and printed materials
Address: PO Box 106, Latham, NY 12110
Contact person: Linda Rozell-Shannon, Founder/President
Email address: contact@birthmark.org
Website: http://www.birthmark.org

National Vascular Malformations Foundation, Inc.

Blepharospasm

Benign Essential Blepharospasm Research Foundation (BEBRF)

Blepharophimosis, Ptosis, Epicanthus Inversus

The Blepharophimosis, Ptosis, Epicanthus Inversus Family Network

People served: Families dealing with Blepharophimosis, Ptosis, Epicanthus Inversus
Services provided: Network of information and support
Phone number: (509) 332-6628
Contact person: Lynne Schauble
Email address: lschauble@wsu.edu

Blindness/Visual Impairments

Blindness-Related Resources on the Web and Beyond

People served: Indiviudals and families dealing with blindness or visual impairment
Services provided: Online and offline resources
Email address: oedipus@hicom.net
Website: http://www.hicom.net/~oedipus/blind.html

Blue Rubber Bleb Nevus Syndrome

Blue Rubber Bleb Nevus Syndrome Support Group

People served: Parents of children with Blue Rubber Bleb Nevus Syndrome
Services provided: Information and referral and support
Contact people: Ronald Wall and Paula Evans
Address: 4975 Preston Park Boulevard, Suite 420, Plano TX 75093
Phone number: 972-985-6200
Email address: ron_wall@ftx.flowtronex.com and paula_evans@ftx.flowtronex.com

Burns

Please note: Burns can occur on any part of the body.

The Phoenix Society for Burn Survivors, Inc.

People Served: Individuals and families dealing with severe burns
Services provided: Information and referral, support, advocacy, and quarterly newsletter
National Headquarters: