D

Deafness

Deaf World Web

• People served: People who are deaf or hard of hearing
• Services provided: Large visual Sign Language dictionary
• Website: http://www.handspeak.com

Di George Syndrome/Shprintzen Syndrome/Velo-Cardio-Facial Syndrome

Please see Velo Cardio Facial Syndrome

Down Syndrome

Please note: This syndrome doesn't necessarily involve craniofacial or facial reconstruction.

Canadian Down Syndrome Society

• People served: Individuals and families dealing with Down Syndrome
• Services provided: Information and referral, support, advocacy, and printed materials
• Address: 811 - 14 Street N.W., Calgary Alberta T2N 2A4
• Phone number: (403) 270-8500 or 1-800-883-5608 (toll free inside Canada)
• Fax number: (403) 270-8291
• Email address: cdss@ican.net

The Down's Syndrome Association (United Kingdom)

• People served: Individuals and families dealing with Down Syndrome
• Services provided: Information and referral, advocacy, and support
• Address: 155 Mitcham Road, London SW17 9PG
• Phone number: 0181 682 4001
• Fax number: Fax: 0181 682 4012
• Website: http://www.downs-syndrome.org.uk/

The National Down Syndrome Congress (United States)

• People served: Individuals and families dealing with Down Syndrome
• Services provided: Information and referral, advocacy, and an annual conference
• Address: 7000 Peachtree-Dunwoody Road N.E., Lake Ridge 400 Office Park; Building #5, Suite 100; Atlanta GA 30328
• Phone number: Toll Free 1-800-235-NSDC or (770) 604-9500 Local
• Contact person: Frank J. Murphy, Executive Director
• Email address: NDSCcenter@aol.com

The National Down Syndrome Society (United States)

• People served: Individuals and families dealing with Down Syndrome
• Services provided: General, clinical and educational information, research, advocacy, affiliate and special programs, and online resources
• Address: 666 Broadway, 8th Floor, New York NY 10012-2317
• (212) 460-9330 or 1-800-221-4602
• Email address: info@ndss.org
• Website: http://www.ndss.org/

Dubowitz Syndrome

Dubowitz Syndrome Parent Support Network

• People served: Individuals and families dealing with Dubowitz Syndrome
• Services provided: Information and referral, support, support for research (registry), educational materials, advocate or ombudsman, and telephone helpline
• Address: P.O. Box 173, Wheatland IN 47597
• Phone number: (812) 886-0575
• Contact Person: Joyce A. Kerns, Chairman

Dwarfism/Short Stature

Quebec's Association of Persons of Short Stature (Canada)

• People served: Individuals and families dealing with dwarfism or short stature
• Services provided: Information and referral and support
• Address: 1251 rue Robin, Montreal, QC H2L 1W8
• Phone number: (514) 521-9671

The Human Growth Foundation

• People served: Individuals and families dealing with short stature
• Services provided: Support of research, family education and service, public education, support of training for growth specialists, and education of the medical profession
• Address: 997 Glen Cove Ave.; Glen Head, NY 11545
• Phone number: 1-800-451-6434
• Email address: hgf1@hgfound.org
• Website: http://www.hgfound.org/

Billy Barty Foundation

• People served: Individuals and families dealing with dwarfism
• Services provided: Education and advocacy
• Address: 929 W. Olive Avenue Suite C, Burbank, CA 91506
• Phone number: (818) 953-5410

Little People of America

• People served: Individuals and families dealing with dwarfism
• Services provided: Information and referral, support for parents and teens, chapters, and newsletter
• National Headquarters: Box 745; Lubbock, TX 79408
• Phone number: 1-888-LPA-2001 (English and Spanish)
• Email address: LPADataBase@juno.com
• Website: http://www.lpaonline.org/

Little People of America - Parents' Committee

• People served: parents of children dealing with dwarfism
• Contact people: Rob and Betty Jacobsen
• Address: 3010 Olympia Way, Longview WA 98632
• Phone number: (360) 636-0276
• BBS/fax: (360) 578-1948
• Email address: jacobsen@aone.com

The Little People of New Zealand

• People served: Individuals and families dealing with dwarfism
• Services provided: Support and information
• Address: 108 Mayfair Ave., Hastings, New Zealand

Little People of Ontario

• People served: Individuals and families dealing with dwarfism
• Services provided: Support and information
• Address: P. O. Box 43072, 4841 Yonge Street, Toronto ON M2N 6N1

The MAGIC Foundation

• People served: Individuals and families dealing with short stature caused by medical problems
• Services provided: Education, information, local support groups, newsletters for parents and children, Parent Help Line, pen pals for children, and public awareness
• Address: 1327 N. Harlem Avenue, Oak Park IL 60302
• Phone number: (708) 383-0808
• Fax number: (708) 383-0899
• Email address: mary@magicfoundation.org
• Website: http://www.magicfoundation.org/

Parents of Dwarfed Children

• People served: Parents of children with dwarfism
• Services provided: Support and information
• Address: 11524 Colt Terrace, Silver Spring MD 20902
• Phone number: (301) 649-3275
• Contact person: Margaret B Badner

Short Stature Foundation

• People served: Individuals and families dealing with dwarfism and short stature
• Services provided: Support, information and referral, and advocacy
• Address: 17200 Jamboree Rd, Suite "J", Irvine, CA 92714-5828
• Phone number: 1-800-243-9273
• Contact person: Rich Crandall

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