Goldenhar Syndrome

Goldenhar Syndrome Support Network

• People served: Parents of children with Goldenhar Syndrome
• Services provided: Information packets and referrals
• Address: 9325 163 Street, Edmonton, Alberta; T5R 2P4; Canada
• Contact person: Barb Miles
• Email address: support@goldenharsyndrome.org

Goldenhar Syndrome/Hemifacial Microsomia Support Network

• People served: Parents of children with Goldenhar Syndrome
• Services provided: Information packets and referrals
• Address: 3619 Chicago Avenue, Minneapolis, MN 55407-2603
• Phone number: (612) 823-3529
• Contact person: Kayci Rush
• Email address: momman695@aol.com

Goldenhar Syndrome Research and Information Fund

• People served: Individuals and families dealing with Goldenhar Syndrome
• Services provided: Information and support
• Address: P.O. Box 61643, St. Petersburg FL 33714
• Phone number: (813) 522-5772
• Contact person: Lori Torman, Executive Director
• Email address: 76232.633@compuserve.com

Hemifacial Microsomia/Goldenhar

• People served: Individuals and families dealing with Goldenhar Syndrome/hemifacial microsomia
• Services provided: Information and support
• Address: 84 Gleniffer Hill Rd., Richboro PA 18954
• Phone number: (215) 364-3199
• Contact person: Cynthia Fishman

Growth Hormone Deficiencies

Please note: Growth hormone deficiencies can occur with many types of craniofacial anomalies.

The Human Growth Foundation

• People served: Individuals and families dealing with short stature
• Services provided: Support of research, family education and service, public education, support of training for growth specialists, and education of the medical profession
• Address: 7777 Leesburg Pike, Suite 202, South Falls Church VA 22043
• Phone number: 1-800-451-6434
• Email address: hgfound@erols.com

The MAGIC Foundation

• People served: Individuals and families dealing with short stature caused by medical problems
• Services provided: Education, information, local support groups, newsletters for parents and children, Parent Help Line, pen pals for children, and public awareness
• Address: 1327 N. Harlem Avenue, Oak Park IL 60302
• Phone number: (708) 383-0808
• Email address: mary@magicfoundation.org
• Website: http://www.magicfoundation.org/