Hard of Hearing

Deaf World Web

• People served: People who are deaf or hard of hearing
• Services provided: Large visual Sign Language dictionary
• Website: http://www.handspeak.com

Hemangiomas, Birthmarks, and Other Vascular Malformations

Please note: Hemangiomas, birthmarks, and other vascular malformations can occur anywhere on the body.

Birthmarks and Hemangiomas InterNETwork Support

• People served: Individuals and families dealing with birthmarks and hemangiomas
• Services provided: Support, information, and online and offline resources
• Email address: hemangioma@hotmail.com
• Website: http://members.tripod.com/~Michelle_G/indexH.html

Hemangioma Hope

• People served: Individuals and families dealing with hemangiomas
• Services provided: Support, newsletter, and information and referral
• Address: 8400 Rohl Rd., North East PA 16428
• Contact person: Cindy Dougan
• Email address: CDouganHH@AOL.COM

Hemangioma Newsline

• People served: Individuals and families dealing with hemangiomas and other vascular malformations
• Services provided: Quarterly newsletter on medical information in the diagnosis and treatment of hemangiomas and other vascular malformations
• Address: PO Box 38264, Greensboro NC 27438-8264
• Contact person: Karla Hall
• Email address: Hemangnews@aol.com or Hemangnews@juno.com

Hemangioma Support System

• People served: Individuals and families dealing with hemangiomas
• Services provided: Information and support
• Address: 1218 Monterey Tr., DePere WI 54115
• Phone number: (414) 336-9399
• Contact person: Cynthia Schumerth

The Hemangioma and Vascular Birthmarks Foundation

• People served: Individuals and families dealing with hemangiomas and other vascular birthmarks
• Services provided: Referrals, financial assistance, resource list of physicians and clincis, quarterly newsletter, bi-annual conference, advocacy, support and counseling, and printed materials
• Address: PO Box 106, Latham NY 12110
• Contact person: Linda Shannon, Executive Director
• Email address: Hemangiom1@aol.com

National Vascular Malformations Foundation, Inc.

• People served: Individuals and families dealing with vascular malformations
• Services provided: Information and support
• Address: 8320 Nightingale, Dearborn Heights MI 48127
• Phone number: (313) 274-1243

Hemifacial Microsomia/Goldenhar Syndrome

Goldenhar Parent Support Network

• People served: Parents of children with Goldenhar Syndrome
• Services provided: Information packets and referrals
• Address: 3619 Chicago Ave., Minneapolis MN 55407-2603
• Phone number: (612) 823-3529
• Contact person: Kayci Rush
• Email address: momman695@aol.com

Goldenhar Syndrome Research and Information Fund

• People served: Individuals and families dealing with Goldenhar Syndrome
• Services provided: Information and support
• Address: P.O. Box 61643, St. Petersburg FL 33714
• Phone number: (813) 522-5772
• Contact person: Lori Torman, Executive Director
• Email address: 76232.633@compuserve.com

Hemifacial Microsomia/Goldenhar

• People served: Individuals and families dealing with Goldenhar Syndrome/hemifacial microsomia
• Services provided: Information and support
• Address: 84 Gleniffer Hill Rd., Richboro PA 18954
• Phone number: (215) 364-3199
• Contact person: Cynthia Fishman

Holoprosencephaly

Please note: Holoprosencephaly can occur with various types of craniofacial anomalies.

The Independent Holoprosencephaly Support Site (United Kingdom)

• People served: Parents of children with holoprosencephaly
• Services provided: Listserv and information
• Contact person: Tim Smith
• Email address: Tim.Smith@gashead.demon.co.uk

Holoprosencephaly Information (United Kingdom)

• People served: Parents of children with holoprosencephaly
• Services provided: Information and support
• Contact people: Bob and Julie Kingshot
• Address: 70 Liphook Rd Linford, Bordon Hants GU35 0PGM
• Phone number: 01420 473 065

Holoprosencephaly-Fighters of Defects Support Group (United States)

• People served: Families of children with holoprosencephaly
• Services provided: Information and referral and support
• Address: 3032 Brereton Street, Pittsburgh PA 15219
• Phone number: (412) 687-6437

Hydrocephalus

Please note: Hydrocephalus can occur with craniofacial anomalies.

Spina Bifida and Hydrocephalus Association of South Australia

• People served: Individuals and families dealing with spina bifida and hydrocephalus
• Services provided: Information and referral, counseling, financial assistance, and practical assistance, and support groups
• Address: 9 Kensington Road NORWOOD South Australia 5067
• Phone number: +61 8 8366 5900
• Fax: +61 8 8366 5901
• Email address: info@spinabifida.asn.au
• Website: http://www.spinabifida.asn.au/

The Queensland Association for People with Spina Bifida or Hydrocephalus (Australia)

• People served: Individuals and families dealing with spina bifida and/or hydrocephalus
• Services provided: Information and support, camps, networking, playgroups, counseling, advocacy, and newsletter
• Website: http://www.spinabifida.org/

Spina Bifida and Hydrocephalus Association of Canada

• People served: Individuals and families dealing with spina bifida and hydrocephalus
• Services provided: Information and referral and support
• Email address: spinab@mts.net
• Website: http://www.sbhac.ca/

Scottish Spina Bifida Associtation

• People served: Individuals and families dealing with spina bifida and hydrocephalus
• Services: Family support, networks, respite care, annual sports meet, and folic acid supplements
• Address: 190 Queensferry Road, EDINBURGH EH4 2BW
• Phone number: 0645 11 11 12
• Email address: 101677.765@compuserve.com

Association for Spina Bifida and Hydrocephalus (United Kingdom)

• People served: Individuals and families dealing with spina bifida and/or hydrocephalus
• Services provided: Information and referral, support, and advocacy
• Address: 42 Park Road Peterborough PE1 2UQ England
• Phone number: 01733 555988
• Email address: postmaster@asbah.demon.co.uk

Hydrocephalus Association (United States)

• People served: Individuals and families dealing with hydrocephalus
• Services provided: 
• Offline: OutReach program, regional educational meetings, social gatherings, networking, conference, and newsletter
• Online: Listserv
• Address: 870 Market Street, Suite 955, San Francisco CA 94102
• Phone number: (415) 732-7040
• Email address: hydroassoc@aol.com
• Website: http://www.hydroassoc.org/

The Hydrocephalus Foundation, Inc. (HyFI) (United States)

• People served: Individuals and families dealing with hydrocephalus
• Services provided: Transitional and emotional support
• Address: 910 Rear Broadway, Saugus MA 01906
• Phone number: (617) 942-1161