Ichthyosis

Please note: Ichthyosis is a genetic disorder that affects the skin.

Foundation for Ichthyosis and Related Skin Types - F.I.R.S.T. (United States)

• People served: Individuals and families dealing with Ichthyosis and related skin types
• Services provided: Publications, newsletter, events, and regional support network
• Address: 1364 Welsh Road G2; North Wales, PA 19454
• Phone number: (215) 619-0670
• Contact person: Jean Pickford, Executive Director
• Email address: jpickford@scalyskin.org
• Website: http://www.scalyskin.org/

Incontinentia Pigmenti

Please note: Incontinentia Pigmenti (IP) can affect the entire body.

The National Incontinentia Pigmenti Foundation, Inc. (NIPF)

• People served: Individuals and families dealing with Incontinentia Pigmenti
• Services provided: Family support and education
• Address: 30 East 72nd Street, New York NY 10021 USA
• Phone number: (212) 452-1231
• Contact person: Susanne Bross Emmerich. Executive Director
• Email address: ipif@ipif.org
• Website: http://imgen.bcm.tmc.edu/IPIF/