Kidney Disorders

Please note: Kidney disorders can be part of craniofacial anomalies or connective tissue disorders.

American Association of Kidney Patients

• People served: Individuals and families dealing with kidney disorders
• Services provided: Information and referral and advocacy
• Phone number: (800) 749-2257
• Email address: AAKPnat@aol.com

Klippel-Feil Syndrome

Please note: Craniofacial anomalies can occur with Klippel-Feil Syndrome.

KFS Connection Home Page

• People served: Individuals and families dealing with Klippel-Feil Syndrome
• Services provided: Online support group, photo gallery with stories, and newsletter
• Email address: kfsconx@aol.com
• Website: http://members.aol.com/kfsconxpgs/index.htm

Klippel-Trenaunay Syndrome

The Klippel-Trenaunay Syndrome Support Group

• People served: Individuals and families dealing with Klippel-Trenaunay Syndrome
• Services provided: Support, information and referral, and printed materials
• Contact Person: Judy Vessey, Director
• Email address: j.vessey@att.net
• Website: http://www.k-t.org/

KT Foundation

• People served: Individuals and families dealing with Klippel-Trenaunay Syndrome
• Services provided:
• Address: P.O. Box 205; Lakeview, North Carolina 28350
• Phone number: (910) 949-3054
• Email address: ktfoundation@earthlink.net
• Website: http://www.ktfoundation.org/index.htm

Kniest Syndrome

Kniest Syndrome Group

• People Served: Individuals and families dealing with Kniest Syndrome
• Services provided: Support, networking, printed materials, and newsletter
• Contact people: Julia & Cory Sondrol
• Address: 1003 Newhall Drive, Faribault, MN 55021
• Phone number: (507) 332-6812
• Email Address: sondrols@aol.com