Langer-Giedion Syndrome

Langer-Giedion Syndrome Association

• People served: Individuals and families dealing with Langer-Giedion Syndrome
• Services provided: Information, public awareness, support for families, newsletter, and advocacy for research
• Contact people:
• Raquel Rozenberg
• Address: 9021 45th Ave. N, Minneapolis MN 55428
• Email address: roze0002@umn.edu
• Louise Kinross
• 89 Ingham Ave. Toronto, Ont. M4K 2W8, Canada
• Email address: kinross@istar.ca
• Email address: lgsa@geocities.com
• Website: http://www.geocities.com/HotSprings/9308/

Laurence-Moon-Bardet-Biedl Syndrome

Please note: Laurence-Moon-Bardet-Biedl Syndrome includes specific facial characteristics that do not require reconstructive surgery.

The LMBBS Society (United Kingdom)

• People served: Families dealing with Laurence-Moon-Biedl Syndrome
• Services provided: Support and information
• Address: Spring Grove, Loudhams Wood Lane, Chalfont St Giles Bucks HP8 4AR
• Phone number: 01494 764924

Laurence Moon Bardet Biedl Syndrome (United States)

• People served: Families dealing with Laurence Moon Bardet Biedl Syndrome
• Services provided: Support and information
• Address: 124 Lincoln Avenue, Purchase NY 10577
• Phone number: (914) 251-1163
• Contact person: Sonya Coster

Laurence-Moon-Biedl Syndrome Network (United States)

• People served: Families dealing with Laurence Moon Bardet Biedl Syndrome
• Services provided: Support and information
• Address: 306 Mirfield Lane, Lexington Park MD 20653
• Phone number: (301) 863-5658
• Contact person: Barbra Mielcarek

Learning Disabilities

Please note: Learning disabilities can occur with many craniofacial anomalies.

LD Online

• People served: individuals and families dealing with learning disabilities
• Services provided: Information and referral, online and offline resources, kids' area, and bulletin boards
• Email address: ldonline@weta.com
• Website: http://www.ldonline.org/

Lissencephaly

The Lissencephaly Network, Inc. (Canada, United States, and Mexico)

• People served: Parents of children with lissencephaly
• Services: Information and support (both online and offline)
• Contact person: Dianna Fitzgerald
• Address: 716 Autumn Ridge Lane; Fort Wayne, IN 46804
• Phone number: (219) 432-4310
• Website: http://www.lissencephaly.org/ 

Lupus

Please note: Lupus can affect all parts of the body.

Victorian Lupus Association, Inc.(Australia)

• People served: Individuals and families dealing with lupus and other connective tissue disorders
• Services provided: Support, information, newsletter, online resources, financial support, and public awareness
• Address: Ross House, 4th Floor, 241-257 Flinders Lane, Melbourne, 3001 Victoria, Australia
• G.P.O. Box 811F, Melbourne, 3001 Victoria. Australia.
• Phone address: (03) 9650 5348
• Email address: damo@axis.jeack.com.au
• Website: http://203.24.125.2/~damo/VLA.htm

Lupus Foundation of America, Inc.

• People served: Individuals and families dealing with lupus
• Services provided: Information (research and resource library), Magazine, email list support
• Address: 2000 L Street, N.W., Suite 710; Washington, DC 20036
• Phone number: (202) 349-1155
• Fax number: (202) 349-1156
• Website: http://www.lupus.org