Pallister-Hall Syndrome

Pallister-Hall Foundation

• People served: Families dealing with Pallister-Hall Syndrome
• Services provided: Information and referral, networking, and printed materials
• Address: RFD Box, 3000 Fairground Road, Bradford VT 05033

Pallister-Killian Syndrome

Pallister-Killian Family Support Group

• People served: Individuals and families dealing with Pallister-Killian Syndrome and related syndromes
• Services provided: Information and support
• Address: 3700 Wyndale Court, Fort Worth TX 76109
• Phone number: (817) 927-8854

Parry-Romberg Syndrome/Romberg Syndrome

The Rombergs Connection and The Romberg's Connection Annex

• People served: Individuals dealing with Rombergs Syndrome
• Services provided: Information and support
• Email address: rombergs@hotmail.com
• Website: http://www.geocities.com/HotSprings/1018/

Pituitary Disorders

Please note: Pituitary disorders can occur with craniofacial conditions.

Pituitary Network Association

• People served: Individuals and families dealing with pituitary tumors or other disorders of the pituitary gland
• Services:
• Offline: Information and referral, resource guide, news on diagnosis and treatment, and support
• Online: Information and bulletin boards for adults and teens and a chatroom
• Address: P.O. Box 1958; Thousand Oaks, CA 91358
• Phone number: (805) 499-9973
• Fax number: (805) 480-0633
• Website: http://www.pituitary.com/

Duggan's Page for Medical Support (Internet)

• People served: Individuals and families dealing with pituitary tumors or other disorders of the pituitary gland
• Services: Information and listserv
• Contact person: Duggan Foster
• Email address: duggan@triax.com
• Website: http://www.geocities.com/HotSprings/2104/

Proteus Syndrome

The Proteus Syndrome Foundation of U.K.

• People served: Individuals and families dealing with Proteus Syndrome
• Services provided: Newsletter and networking
• Contact people: Tracy and Jordan Whitewood - Neal
• Address: 46 The Croft, Hastings East Sussex, ENGLAND TN34 3HH
• Email address: tracey.whitewood_neal@virgin.net

The Proteus Syndrome Foundation, Inc. (United States)

• People served: Individuals and families dealing with Proteus Syndrome
• Services provided: Newsletter and networking
• Contact person: Kim Hoag
• Address: 4915 Dry Stone Drive; Colorado Springs, CO 80918
• Phone number: (719) 264-8445
• Email address: kimkhoag@adelphia.net
• Website: http://www.proteus-syndrome.org/

Psoriasis

Please note: Psoriasis can occur along the hairline and/or on the scalp as well as on the knees, elbows and hands.

Canadian Psoriasis Foundation (CPF)

• People served: Individuals and families dealing with psoriasis
• Services provided: Information and referral, support thru chapters, publications, and newsletter
• Address: 500-A, 1306 Wellington Street, Ottawa, Ontario, Canada, K1Y 3B2
• Phone numbers: 1-800-265-0926 (Canada Only) or (613) 728-4000

Psoriatic Arthropathy Alliance (PAA) (United Kingdom)

• People served: Individuals and families dealing with psoriasis
• Services provided: Information, support, advocacy, and public awareness
• Address: PO Box 111, St Albans Herts AL2 3JQ 
• Phone number: (0)1923 672837
• Email address: office@paalliance.org
• Website: http://www.paalliance.org/

National Psoriasis Foundation (United States)

• People served: Individuals and families dealing with psoriasis
• Services: Newsletters, information, physician referrals, individual counseling and assistance, local communication networks, correspondence network, research, conferences, and a physicians' listing
• Address: 6600 SW 92nd Avenue, Suite 300, Portland OR 97223
• Phone number: (503) 244-7404
• Email address: 76135.2746@compuserve.com
• Website: http://www.psoriasis.org/