Robinow Syndrome

Robinow Syndrome Foundation

• People served: Individuals and families dealing with Robinow Syndrome
• Services provided: Information and support
• Address: P.O. Box 1072, Anoka MN 55303
• Phone number: (763) 434-1152
• Email Address: kmkruger@comcast.net
• Contact person: Karla Kruger

Romberg Syndrome/Parry-Romberg Syndrome

The Rombergs Connection and The Romberg's Connection Annex

• People served: Individuals dealing with Rombergs Syndrome
• Services provided: Information and support
• Email address: rombergs@hotmail.com
• Main Website: http://www.geocities.com/HotSprings/1018/
• Annex Website: http://www.geocities.com/HotSprings/Spa/4818/

Rubinstein-Taybi Syndrome

Please note: Children, teens, and adults with Rubinstein-Taybi Syndrome have specific facial features that do not require reconstructive surgery.

Rubinstein-Taybi Parent Group (RTPG)

• People served: Parents of children with Rubinstein-Taybi Syndrome
• Services provided: Support, parent-matching, information, and newsletter
• Address: PO Box 146, Smith Center KS 66967
• Phone number: (785) 697-2984
• Contact people: Garry and Lorrie Baxter
• Email address: lbaxter@ruraltel.net
• Website: http://www.tucson.com/rts/

Russell-Silver Syndrome

Please note: Children, teens, and adults with Russell-Silver Syndrome have specific facial features that do not require reconstructive surgery.

Association for Children with Russell-Silver Syndrome, Inc.

• People served: Individuals and families dealing with Russell-Silver Syndrome
• Services provided: Information and support
• Address: 22 Hoyt Street, Madison NJ 07940
• Phone number: (201) 377-4531