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Thyroid Disorders

Please note: Thyroid disorders can sometimes occur with craniofacial anomaliies.

Thyroid Foundation of Canada/La Fondation canadienne de la Thyroïde

• People served: Individuals and families dealing with thyroid disorders
• Services: Awareness, education, and support thru chapters
• Address: National office - 1040 Gardiners Road, Suite C, Kingston, Ontario K7P lR7
• Phone numbers: 1-800-267-8822 (IN CANADA) or (613) 634-3426
• Email address: thyroid@limestone.kosone.com
• Website: http://home.ican.net/~thyroid/Canada.html

The Thyroid Foundation of America

• People served: Individuals and families dealing with thyroid disorders
• Services provided: 
• Offline: Information, support, printed materials, and newsletter
• Online: Links
• Address: 350 Ruth Sleeper Hall - RSL 350 Parkman Street, Boston MA 02114-2698
• Phone numbers: 1-800-832-8321 or (617) 726-8500
• Email address: tfa@clark.net
• Website: http://www.clark.net/pub/tfa/

Thyroid Discussion Group (Internet)

• People served: Individuals and families dealing with thyroid disorders
• Services provided: listserv and newsgroup
• Website: http://www.io.com/thyroid/

Tracheostomy

Aaron's Tracheostomy Page

• People served: Anyone caring for a child with a tracheostomy at home
• Services provided: Information, resources, and a photo gallery
• Contact person: Cynthia Bissell, RN
• Email address: cynthia679@aol.com
• Website: http://user.aol.com/trachtube/

Treacher Collins Syndrome

The Treacher Collins Family Support Group (United Kingdom)

• People served: Individuals and families dealing with Treacher Collins Syndrome
• Services provided: Information and support
• Address: 114 Vincent Road Thorpe Hamlet Norwich Norfolk NR1 4HH
• Website: http://www.tcfsg.demon.co.uk/

Treacher Collins Foundation (United States and Canada)

• People served: Individuals and families dealing with Treacher Collins Syndrome
• Services provided: Networking opportunities, newsletter, booklet, bibliography of materials, and lending library
• Address: P.O. Box 683, Norwich VT 05055-0683
• Phone numbers: 1-800-TCF-2055 or (802) 649-3050

Treacher Collins Network (Internet)

• People served: Individuals and families dealing with Treacher Collins Syndrome
• Services provided: Online and offline resources and listserv
• Contact people David and Kathi Weaver
• Email address: TCNet@geocities.com
• Website: http://www.geocities.com/Heartland/Plains/6153/

Treacher Collins Syndrome

• People served: Individuals and families dealing with Treacher Collins Syndrome
• Services provided: Message board and resources
• Email address: anpinto@geocities.com
• Website: http://www.treachercollins.org

Trigeminal Neuralgia (Facial nerve pain)

Trigeminal Neuralgia Resources (Internet)

• People served: People dealing with Trigeminal Neuralgia or other facial pain syndromes
• Services provided: Resources
• Website: http://neurosurgery.mgh.harvard.edu/TNR/

Trisomy

Please note: Children with trisomy have craniofacial anomalies that do not require reconstructive surgery.

9-TIPS (Trisomy International Parent Support)

• People served: Parents of children with Trisomy 9
• Services provided: Parental network system, medical information, and bi-annual newsletter.
• Address: Children's Hospital of Michigan, 3901 Beaubien Blvd., Detroit MI 48201-2196
• Phone number: (313) 745-4513
• Parent contact:
• Alice Todd at (909) 862-4470

Trisomy 12P Parent Support Organization

• People served: Parents of children with Trisomy 12p
• Services provided: Information and support
• Address: 105 Mill Pond Rd., Roswell GA 30076
• Phone number: (770) 993-4796
• Contact person: Cindy Smith

S.O.F.T. (Support Organization For Trisomy)  

• People served: Parents of children with Trisomy 13, 18, or other chromosome abnormalities
• Services provided: Quarterly newsletter, booklets, pen pal program, phone network. chapters, links to international chapters, and annual international conference
• Address: 2982 S. Union St., Rochester NY 14624
• Phone numbers: 1-800-716-SOFT or (716) 594-4621
• Contact person: Barbara Van Herreweghe
• Email address: BARBSOFT@aol.com
• Website: http://www.trisomy.org/

International 11;22 Translocation Network

• People served: Families of children with Trisomy 22
• Services provided: 
• Offline: Newsletter, information, and support
• Online: Photo gallery
• Contact people::
• Canada/U.S.
• Stephanie St-Pierre
• Address: 232 Kent Avenue Timmins, Ontario, CANADA P4N 3C3
• Phone number: (705) 268-3099
• Email address: stpierre@ntl.sympatico.ca
• Europe
• Julia Parker
• Address: Laverstock, Salisbury, Wilts ENGLAND SP1 1SJ
• Phone number: 01722 330391
• Email address: JOKENER@aol.com
• Website: http://www.nt.net/~stpierre/

Tuberous Sclerosis

Please note: People with Tuberous Sclerosis may have a disfiguring facial rash.

Tuberous Sclerosis International

• People served: Individuals and families dealing with Tuberous Sclerosis
• Services provided: Associations throughout the world, information, research, public awareness, and support
• There is information about all the Tuberous Sclerosis Associations around the world at the address below.
• Website: http://crystal.feo.hvu.nl/Groepen/TSI/TSI.htm

Turner's Syndrome

Please note: Craniofacial anomalies can occur with Turner's Syndrome.

The Turner's Syndrome Society of the United States

• People served: Women, teenage girls, and young girls with Turner's Syndrome
• Services provided: 
• Offline: Information, public awareness, chapters throughout the U.S., and news related to research
• Online: Photo album, online chapter, chatroom, newsgroup, and resources
• Address: 1313 Southeast 5th Street, Suite 327, Minneapolis MN 55414
• Phone number: 1-800-365-9944
• Email address: director@turner-syndrome-us.org
• Website: http://www.turner-syndrome-us.org/

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