Velo Cardio Facial Syndrome/Di George Syndrome/Shprintzen Syndrome

Velo-Cardio-Facial Syndrome Information Page (Internet)

• People served: Individuals and families dealing with Velo-Cardio-Facial Syndrome/Di George Syndrome/Shprintzen Syndrome
• Services provided: Information and referral for both online and offline and photo gallery
• Contact people: David and Susan Marchette
• Email addresses: marchett@crosslink.net or speech@crosslink.net
• Website: http://www.crosslink.net/~marchett/vcfs/vcfs.shtml

The 22q11 Group (United Kingdom)

• People served: Individuals and families dealing with Velo-Cardio-Facial Syndrome/Di George Syndrome/Shprintzen Syndrome
• Services provided: Information and resources, listserv
• Email address: julie@vcfs.net or heather@vcfs.net
• Website: http://www.vcfs.net/

Velo-Cardio-Facial Syndrome Educational Institute (United States)

• People served: Individuals and families dealing with Velo-Cardio-Facial Syndrome/Di George Syndrome/Shprintzen Syndrome
• Services provided: Education and advocacy, networking, newsletter, support groups
• Address: Upstate Medical University, University Hospital,
• 708 Jacobsen Hall (C.D.U.), 750 East Adams Street,
• Syracuse, NY  13210
• Phone number: (315) 464-6590
• Fax number: (315) 464-6593
• Email address: vcfsef@mail.upstate.edu
• Website: http://www.vcfsef.org/

Vestibular Disorders

Please note: Vestibular disorders can occur with many types of craniofacial anomalies.

The Vestibular Disorders Association (VEDA)

• People served: Individuals dealing with vestibular disorders
• Services provided: 
• Offline: Information, support, newsletter, printed materials, videotapes, database, and link to other members
• Online: Resources
• Address: PO Box 4467, Portland OR 97208-4467
• Phone number: (503) 229-7705 (answering machine)
• Email address: veda@teleport.com
• Website: http://www.teleport.com/~veda/

Vitiligo

Please note: Vitiligo can occur anywhere on the body.

National Vitiligo Foundation, Inc.

• People served: Individuals and families dealing with vitiligo
• Services provided:
• Offline: Research and education
• Online: Listserv, gallery, and resources
• Address: PO Box 6337, Tyler TX 75703
• Phone number: (903) 531-0074
• Contact person: Jerri Bossley, Executive Director
• Email address: 73071.33@compuserve.com
• Website: http://www.nvfi.org/